Showing posts with label siblings. Show all posts
Showing posts with label siblings. Show all posts

Sunday, October 28, 2012

Quick Catch Up

LONG.overdue.UPDATE. 
{in pictures}.
we've been busy.
very.very. busy.

someone got glasses for being farsighted.
more equipment, but have to say,
pure {CUTE.ness}

he also got the new Cochlear N5s!

Check 'em out! You can't even see them from the front anymore!
pure {EXCITEMENT}
(more to come in a separate post)

someone else got a nice fresh hair cut.
because her school had a bout of lice, and unfortunately, so did she.
{EW}
what a trooper she was.
what a wreck her momma was.

my first born turned SIXTEEN.
wow. it can't be possible that I'm the mother of a 16 year old.
{SIGH}
He also got his first job. at Wendy's.
and no, he doesn't have his driver's license and this momma
is in no hurry for him to get it.
in due time, right along with good grades and that one word - responsibility.
{smile}

then there was also the first dentist appointment.
Do you know how AMAZING it felt to sit back and let Aiden
answer all the questions the hygienist asked?
{MIRACLE} 
of cochlear implants.

Ryan and Kailyn have really stepped it up with their little bro.
they read to him.
play with him.
have conversations with him.
argue with him.
teach him.
more so than ever before.
pure{LOVE}

...just because

my boy's gross motor skills and motor planning skills
have skyrocketed.
he's not stumbling near as much anymore, but instead
jumping and running and leaping and everything else in between.
pure{BOY}

he loves to {LEARN}
asking questions ALL.the.time.
enough said.

We lost our kitty Bonz.
 we had him eight years,
he was a part of our family.
it's been difficult for all of us,
(especially his brother Baby)
and he is dearly missed.
{RIP} sweet Bonezee.

Thursday, March 15, 2012

HeLLo SuNsHiNe!

It has been absolutely beautiful out! And gorgeous weather = parktime! We went the other day after A got out of school (have I mentioned how much I LOVE having my afternoons back with him!). As I sat back and watched him, I was amazed at how far he's come gross motor wise. There is NO.THING better for OT and PT challenges than the.PARK. Last summer he made leaps and bounds (which I attribute to all our park visits), but watching him on this particular day I was amazed how he was a madman running, climbing, and all over the place with NO falls!


This same day, a little boy came up to Aiden and asked, "How old are you?" Aiden looked him right in the eye and belted out (with great confidence), "I four years old!"

Okay - first off, he's three for a few more days, but I loved how he wanted to take this stance of "I'm a big boy and can hang with the big boys"; and second, he typically never looks at, much less talks to, any strange child or adult without me urging him to answer back. This momma was smiling ear to ear.

A couple days before, I got all three of my kids to come outside and enjoy some fresh park air. Ryan and I played a few good games of tether ball while K & A played hide-n-seek and ran around.

 my girlie-girl.
mom's boys.

 we played 'til the sun went down
(then went out for chocolate shakes!)

my life.

Hope you are getting to enjoy some sun-shiney rays too ... perfect therapy for the mind & soul.

Tuesday, November 15, 2011

ten on tuesday



1. I can't believe I'm up past 10 pm. On the nights I lay with Aiden to get him to go to sleep (don't judge, bad habit, third child) I'm out right with him. On the nights I have off, once I say goodnight to K, I'm crawling in bed myself.

2. cRaZy past couple of weeks ...

3. We had my SIL's wedding a couple weekends ago. She was stunning, absolutely beautiful. Selfishly, one of my favorite parts was watching Aiden dance the night away. I've never seen him dance so much. Actually, outside of Laurie Berkner or mimicking his sister here and there, I don't think I've ever seen him truly GET DOWN . I was in Heaven.

4. Ryan had been complaining about his belly the past few weeks. I blew it off to "teenage boy eating habits". He came home from his Lacrosse game last Tuesday, scarfed down two bowls of chili, and went into complete pain mode. After giving him antacid type of meds, the pain kept getting worse and worse to the point I took him to the ER (last thing I wanted to do because I swore it was his teenage gut and at this point it was past 10 pm and WAY past my bedtime). Glad I listened to  him. He had his appendix removed early the next morning and spent two days in the hospital.

5. The day Ryan got home from the hospital, Aiden got the flu. In three years, the boy has never really puked. All.night.long - he puked. Of course he did.

6. With #3 & #4, I had to cancel Aiden's IEP, which was just fine since I wasn't completely prepared. I know what goals he needs and I (hope) they won't fight me, but we (mom & dad) just have other thoughts in mind that we're still trying to work through. For now though, we forge forward with what we have, and know it's always nice to have options. It's now this Friday. Guess I know what I'll be working on tomorrow.

7. I need a vacation. then again, who doesn't?

8. Next weekend (yep, Thanksgiving weekend), I'm heading to Chi town with one of my favorite chics, my niece, and my all time favorite daughter for a girl's weekend. I think my mom may even join us. I am BEYOND excited (see #'s 3 & 4 above).

9. I'm pretty sure we're heading to my mom's for Christmas. I cannot wait to see my grandma & grandpa. I missed them this summer and I'm way overdue for morning coffee/gossip time with the best grandma in the whole.wide.world AND for 4pm Miller time with the most amazing man ever. and of course, i'm so excited to see my mommy too (and maybe actually get date night with another amazing man I know)!

10. It's almost 11 pm. Way past my bedtime, yet this peace and quiet time is beautiful.

10a - I have so much to catch up on with Aiden ... OT, speech, his bossy language, incidental learning ... so much to say. Guess I need to stay up past 8pm more often!!

Tuesday, October 18, 2011

Ten on Tuesday

1. My sister-in-law is AMAZING. She's married to my husband's "Irish twin" (they're 14 months apart). We share the same birthday. She's a teacher-of-the-deaf. She has been such a blessing in this journey and I cherish the relationship we've built and all her advice to me. I'm lucky to have her insight, her knowledge/expertise, and her love for Aiden all in one.

2. I spoke with this CI momma today. I love all the friendships I've built over the years. I've never had such close relationships with people without actually ever meeting them. There's something about talking to someone about that certain something and they just get it. One day, we will meet and our boys will play. We have that "cheese-head" link, there's no way we can't!

3. Today I sat and observed Aiden's class again - for a good two hours (he didn't know I was there). I'm preparing for his upcoming IEP and I want to fully understand what his classroom experience is and see him in action. Then I was invited to sit in a speech session with him. He didn't know I was coming, and when he walked in, his face lit up and he ran right to me with a big ol' "MOMMY!" Needless to say, we spent the rest of the afternoon together after that session.

4. Fall is here. I'm bummed though, because all the leaves started changing colors, which I absolutely LOVE, and the next weekend they were pretty much gone after the big wind storm we had. I was hoping for a lot more time of their beauty. I am looking forward to my upcoming field trip with Aiden's class though to the pumpkin farm! Fun times! Living in Texas for so long, I forgot how much I LOVE fall!

4. Parent-teacher conferences for Ryan = complete success. All of the teachers raved how respectful and what a nice young man he was. A few said their class was too easy for him and he needed to be bumped to honors. One said he was their favorite. One asked if he was on "a program"?!?  Last year I would've understood this more, but when further questioned if he was talking about an IEP, the teacher answered, "Well ya, have you seen his handwriting?" So proud of my messy handwriting son who is kicking butt and taking names!

5. Kailyn's volleyball season is over. What an amazing program they put on. And by the end of it, she had a handful of serves that made it OVER the net - scoring a point, many bumps over the net - and scoring a point, and even a couple sets. AND she's become quite the defensive player this season in soccer. Best thing about all of it, she loved every minute of it.

6. Any day now I'm going to start a photograph of the day blog (or just add a tab to this blog). I LOVE photography and I've been playing around with my camera a lot. My dream is to have a successful photography business, but want/need to get some more practice under my belt. SO, I thought what better motivation than to take, edit, and post one picture a day. This way I figure I'll practice a certain technique every couple weeks, without feeling so overwhelmed with it all.

7. I'm having a hard time with this full day of school five days a week thing. I miss my baby. The other night he told me, "Mommy, Aiden's sick." (he has a cough), "stay wit mommy. No school." Okay.  (heart melting and such a sucker).

8. OT has been AMAZING! I have so much NEW knowledge I never understood and so many NEW ideas to work with him on and so much NEW faith in the whole OT program. Miss Amie ROCKS. Aiden loves her. I love her. I have so much to share about it all.

9. Aiden is going through a monkey phase. Last night he insisted on "monkey top and monkey pants" for pjs. This morning he fought me to put on his shirt because he wanted a monkey shirt. So during our afternoon together, we ate pizza then went shopping for monkey shirts. Thanks to Old Navy's character shirts and Curious George, we didn't have to look far.

10. We live in the country. The few people who drive by, fly. Even with kids outside playing. We live on the corner. Today they pounded in the pole to put up our "Deaf Child in Area" sign. Our little po-dunk town had AMAZING turn around with no argument about putting up the sign what-so-ever. One of the five has a girlfriend who is Deaf. Aiden and I will be delivering some homemade goodies this week. So thankful.


Thursday, August 25, 2011

Back to School


Wow. This summer flew by. Busy is an understatement, but we had a blast, and great memories were made.

All kids got up pretty easily, most of them excited to start their first day. I'll let you guess which one wasn't (hint: he's taller than I am).

SMILES:

my handsome high schooler to ...

my excited 5th grader to ...

my preschooler!
  • Through the summer, Aiden slept until 9 or 10. No joke. First day of school, he got up with no problem! The best part, the lack of our typical wrestling match trying to get him dressed.

  • Aiden says, "No more J! Mary!" ("J" is what he called his teacher, Mrs. J, from last year, Mary is his new teacher). Love it.

  • No tears on the bus! AND, his friend Eric is riding with him this year too! It's amazing for as little of a city we live in that there's another little boy Aiden's age with bilateral Nucleus Freedoms. They are the only two with CIs in our local school district, hence our reason for sending them out of district. ; )

  • At drop off, he looked back, waved to his bus driver and yelled, "Bye Jahtee (jackie)!"
  • He was a bundle of laughter and smiles the rest of the night, talking nonstop.

  • Kailyn's one of the "big kids" in the school now (K-5th) and boy is she loving it!

  • As her bus pulled away today, she was in the back seat and mouthed to me, "Look! I get the back seat!" Guess it's still cool to ride in the back of the bus.

  • My best oldest child ever, Ryan, wasn't too excited about his first day, but then again, what teenager is. We decided to enroll him in a Catholic high school for the remainder of his high school career. Our local district h.s. wasn't a good fit and there were a lot of things we didn't agree with or like about the school. The good thing is he's completely on board and is very positive about his new start. He's hating the whole uniform thing - I on the other hand, love it.
and DEEP BREATHS
  • I struggle with the thought of Aiden being in school five full days a week. He's just three. The good thing is they nap the last 60-90 minutes of school - this is good as he won't nap at home, but he will with others. It's a long day, but a structured day full of language enrichment. I'm going to give it a month or so, if it seems too much for him, I'll change back to 1/2 days like we did last year. I honestly think he'll be just fine.

  • On top of the long school day, he has quite the bus ride, which makes his day even longer. He's on the bus a good 45 minutes each way to and from school. I may start to pick him up though, since I'll pick up Ryan everyday and their schools are only a couple miles from each other. I gotta say, he loves riding the bus though, and I like the thought of some one on one with Ryan before my wild ones get home. We'll see.

  • On top of school, Aiden will still have his auditory verbal therapy every other week and OT once a week, each during the school day. Then there's the possibility we may have to add a speech pathologist in the mix, but I'm going to fight to get him more speech time at school through his IEP. I'm thinking of taking him out of school one day a week and deem it "therapy day".

  • I have worries for each of my kids this year, one no more than the other. I worry about Ryan and Kailyn just as much as I worry about Aiden. Being a teenager is not easy and honestly, you couldn't pay me enough money to go back to those years. I hope he finds himself and realizes how much he has to offer this world. He truly is brilliant and has such a big heart. Kailyn struggles in some areas and I pray the school jumps on board and starts working as a team with me. I have to say, my girl always has a smile on her face that lights up a room, but is her own biggest critic. I'm working hard with her to get that "I can do anything I set my heart and soul to" attitude. Aiden has new obstacles to overcome on top of everything else we continue to strive for. We're still on the unknown path, with no official diagnosis, but we've also already entered the path to success as we work through mapping issues and get a jump start in OT. All I can do is hope. Hope and pray, and continue to support each of them in their own journeys. It's not easy, but I know they will all overcome.
I have a feeling it's going to be a good year for all of us; very busy, but good. We all have some hard work ahead of us, but I think we're at the point where we're ready for anything ... either that, or about to all fall on our faces, but what fun would that be?

Tuesday, August 23, 2011

Ten on Tuesday (ok, eleven)

I have so much catching up to do. All three kids start back to school tomorrow, so hopefully I'll get in more blogging time and able to catch up on our summer journey.

For today's "ten", I thought I'd post ten of my favorite photos from our three week journey at the John Tracy Clinic. Truly though, they are all priceless.

my partner.
I love this picture for many reasons, foremost, it screams - WE MADE IT! all after:
getting to the airport at 5:30am in Cleveland;
to taking the tram to switch planes in Dallas;
to arriving in Burbank then having to tote two suitcases, a car seat,
four carry-ons, and a 3-year old to the rental car bus to the rental car place;
to navigating our way in LA (first time there) to the apartments and,
having to make an extra go around in lunchtime traffic through LA before finding it.
This girl was my ROCK! She didn't complain once, she helped out without being asked,
she kept Aiden entertained, and she gave me many smiles and hugs throughout.
She kept me grounded and calm.
and we celebrated our success together - this girl is AMAZING.


lifelong friends.
I remember the day I called up my friend Kat and talked to her about JTC.
We met each other right before I left Texas.
We talked on the phone MANY times after I left.
We became best buds through all our hour plus long conversations -
like we'd known each other for.ever.
We met a third time and experienced a once in a lifetime journey together at JTC,
and tightened our bond even more.
and while there,
our kids created that lifetime bond as well.
one day, our kids will look back at this picture and laugh at how small they were,
then provide a "cheers" at how far they have all come.

a smile.
Ahhhh, Kathleen, the perfect way to begin and end everyday,
with her welcoming, heart warming smile. If you needed something,
she'd do her best to have it to you by the end of class.
She is beyond amazing.

quiet time.
This reminds me of the down times we had.
no tv in the apartment, electronics were limited,
and we could only bring so much. when we weren't outside,
Aiden did a lot of "reading". here he decided to read to
his new horse, which was given to all the kids
the day of orientation.


best buds.
It was hard to choose between the two above.
As Aiden would say, this is "Monden" (London).
He was the first name Aiden knew from his class;
they were buds the whole time.
Both were more quiet around others,
but sure did chat it up to one another.
i LOVE these two pics.

the path.
this was our walk every morning to school.
aiden, always the "lolly-gagger", would take his sweet ole' time
down this path, having to stop and check everything out.
to the right was the "never-ending"
gathering lawn and the apartments, and
if you asked Aiden which way to school (once out the gate),
he'd point to the left, and say, "Dis way!"


harmony.
We all know the (out in public) "stares and looks".
here, our children were unified.
not just our hoh/deaf children, but our hearing children as well.
and not just the children, but just as much, the adults.
being around people who truly "get it",
learning from one another, realizing,
we're not climbing this mountain alone.

forever.friends.
The sibling program at JTC was one of the largest they've ever had,
nearly 20 siblings coming together,
and it was purely phenomenal.
Kailyn made life long friends with girls and boys
from around the world.
she made crepes with Armelle and Clarence from France;
had sleepovers with Sydney from Texas;
ran the lawn (and tv room) with Debi, OJ, Christian, Gregoire, Louise, Owen, and Cole;
became a "big sister" to many of the younger ones,
and adopted her own big sister, Alyssa from Alberta.
the relationship and memories these kids built together,
was priceless.

family.
the first two weeks was Kailyn, Aiden, and I.
By week three, we were missing "our boys"
and ready to reunite as a whole family.
I am so grateful that Aiden's daddy and brother got to experience
a piece of this life changing journey with us.

it takes a village.
each person in this picture has touched my life in some special way -
through words, hugs, tears, smiles, lessons learned, listening.
relationships were built, life-long friendships were made.
each with our own journey, yet
together. united.
with similar goals and hopes -
to overcome obstacles, to obtain services our children NEED,
strength and knowledge to forge on & fight for what WE know best - OUR CHILD,
for our deaf/hoh children to LISTEN and SPEAK.
and together, we will make it.

and this list wouldn't be complete without:

the infamous tree.
and just like the John Tracy Clinic,
you have to be there to truly experience all it has to offer.

Tuesday, July 12, 2011

JTC - A Letter to Aiden - Days 1 & 2


I am in complete awe. This place is AMAZING. What makes it that way are the people. The teachers and the staff are absolutely phenomenal; what completes it, are the families who come from AROUND THE WORLD. Each family with their own story, their own journey, their own challenges and advice ... ALL with a similar means to an end.

I talk and I share, but even more so though, I do what I work so hard at teaching my deaf child to do, I LISTEN. I've thought about how to share this amazing journey, and all I keep coming back to, is that I want this to be my words to Aiden. So I'm going to mix it between writing him letters, through this blog, and documenting key points to share. One day I hope he'll read this and understand how much of an impact three small weeks can have.

In these letters though, I will highlight some key points that may help some of you as well. If there's anything I've learned in this journey, is that we are not alone. We have to help each other.

Dear Aiden,
Four days ago I packed up many bags to embark on a journey across the good ol' US of A with you and your sister. I knew from reading other's stories, that I, as your mother, needed this, not only for you, but for myself, and our family. This place is amazing, and in the two short days we've been here, it has already impacted our lives.

Your daddy and I decided to bring you here for further evaluations, for a second (and truly a third or fourth) opinion from professionals who have been working with deaf/hoh children for many, many years (over 60 years I believe). We wanted to learn not only from these professionals, but even more so, from the families who travel from around the world with a similar goal for their children.

You have been hearing now for two years and four months, and every single day you amaze us. We still have our worries, and honestly, we probably always will. We came here to get a fresh perspective, to learn how to best help YOU, because YOU have your own story, your own journey, and we're searching for unanswered questions; answers to questions to help us help you soar.

I knew coming here would mean meeting families from around the world. AROUND THE WORLD. What I didn't know, is how much these families would effect me, even in two short days of being with them. It has already been a roller coaster of emotions as I have sat and listened to each their stories, each of their struggles. Every story is different, yet the same. Every story though, has the same plea, to help them better help their child, to reach out to find answers, and understand, and learn ... not just about learning to listen and speak in general, but learning to listen and speak in EACH.AND.EVERY. INDIVIDUAL SITUATION.

SO, what do I want you to remember from the past few days? Here are my highlights:
  • You LOVED the plane ride! We were up at the crack of dawn to catch a 6:30am flight out of Cleveland, with an hour layover in DFW, until we finally arrived in California at 10:40 a.m. - (three hour time change = one tired mommy and two hyped up kids). Oh, and by the way, the only time you slept was 15 minutes before we were due to land in LA. Nice.
  • We're staying in university apartments, yes, where college kids stay during the school year. Makes me want to go back to the day. So much fun, so little luxury. No tv, no microwave, old carpet, and twin beds. The only thing I'm missing is the keg (nevermind that). I pushed our twin beds together though to make a king size bed for all of us to sleep together. Perfect.
  • Again, families are here from around the world - France, UK, Canada, UAE, New Zealand, and all around the United States. The staff at John Tracy says this is one of their biggest groups with so many spouses together and one of their biggest sibling groups ever. Although your daddy is not with us right now, he will be here soon. I gotta say, it's great to hear all these dads talk and open up; you'll understand why I say that one day and I wish your dad could be here now.
  • Kailyn ventured with us. I wanted to bring Ryan too, but, at 14, he was too old for the sibling group (age 12 is the cut-off), and they wouldn't allow him to participate in the parent classes. It was hard to embark on this without him. He's with daddy for a couple weeks, then heading to Texas to visit friends for a week. He assured me he'd rather be in Texas than here without much to do. Your sister has been QUITE.THE.TROOPER. I am SO proud of her and all she has done to step up and help, both of us. You my son, are lucky to have her, and so am I.
  • One of the BEST things about this whole trip is that we are here with your friend Thomas and his mom. I met her before we left Texas, when you and Thomas were just a few months old. We only met once and instantly connected, we were all we had. We kept in touch through email and many therapeutic phone calls. Three years later, we're all here together, getting to truly know each other, although it feels like I've known them forever. and Thomas has a sister close to your sister's age and of course they're girls and already best buds. I know a time will come where we'll all be together again and you and Thomas will be up all night playing video games and talking nonstop while your moms sit and laugh about all we went through to get you both to hear and speak and now can't get you to shut-up. ; )
  • Your first day of class was great. You didn't have any separation issues and you joined right in. You are always shy, and don't like to use your words as much around new situations, but your teacher Betty told me you had good conversational speech with another little boy in your class. I think it's the perfect fit for you.
  • By day two, you already knew a lot of the kids names in your class, your teacher's name, and one of the teacher's aide's names. I'm so proud of you! Thank you teachers for making an imitation booklet of "Brown Bear, Brown Bear" with the teacher's and kid's pictures.
  • Mommy is worn.out. Not only from the trip and three hour time change and the stress and the overwhelming sense of just being here, but even more so, from meeting so many families, and hearing so many stories. The stories and the whole atmosphere has been emotionally draining ... in a very emotional happy kinda way.
  • I miss your brother Ryan and I wish so bad he was here. One of the things I've learned throughout your short three years of life, is this isn't just your journey, it's our family's journey. Being here without Ryan, and your dad for a couple of weeks, seems incomplete. Dad will be here soon, I just wish I would've pushed more for Ryan to be here as well. As much as he doesn't admit it, this journey greatly affects him, it's one of my biggest struggles. Just another reason we're here. I really miss him.
The biggest thing that sticks in my mind from the past two days, "We want to learn from you - the parents, because you (the parents) are the true professionals." Do you know how little I've heard that throughout this journey?!? The staff here has repeated this over and over again. They are one of very few professionals who have ever admitted to NOT knowing MY child better than I do; the only ones who have told me,

"The parent is the most important team member."

Amen to that.

Other key points I took keen note to are:
  • The staff is here to help you figure out the challenges holding your child back AND their strengths to help them overcome these challenges.
  • The staff is here to work as a team (OT, family/child/marriage counselors, speech/language therapists, teachers of the deaf AND the parent) to come up with a plan specifically tailored for YOUR CHILD - not a "one size fits most" type of plan. They will look at social/emotional, sensory and motor, communication, self-help, and cognitive abilities.
More than anything though Aiden, I want you to know that I think you are such a trooper. I see that your hearing loss does not hold you back and that you do not give up until you get your desired results. You my son, are SIMPLY.AMAZING. and I couldn't be more proud.

To end, I have to quote from your sister,

"I'm so glad Aiden is deaf."

to which I looked at her, with a smile, because I knew exactly what she meant.

"Because if he wasn't deaf mom, we would never be here in California learning and making all these great friendships from all over the world."

What a great life experience you've brought to many honey. and I wouldn't change anything about you for the world.

Friday, May 27, 2011

for the LOVE of brothers

one of my favorites of my boys

Last night as I was cleaning up the dinner dishes,
Ryan and his girlfriend, Anna,
were playing with Aiden in the living room.
Aiden ADORES Anna (or "nana" as he calls her).
He adores his brother too, BUT,
when Anna's around, he's all about the girls.
SO cute.

Out of the blue, I hear Aiden yell at Ryan,

"Ryan stop! No mommy's phone!"

count them - FIVE words - TOGETHER.
each one of them, CLEAR.AS.DAY.
an AMAZING possessive.
and exclamation points galore.

WAY TO GO BUDDY!

He knew Ryan wasn't supposed to have my phone without asking,
let everyone know it,
and marched it right back over to me.

Actually, he's been onto Ryan a lot lately,
(ryan loves to mess with him),
so Aiden's phrase of the month has been,

"Ryan, please stop!"

Ryan's been feeling the wrath of Aiden lately.

Later that night, after Kailyn was through reading
Aiden his bedtime books,
the four of us sat in Aiden's room chit-chatting.
Aiden ran over to his brother,
jumped on his belly, threw his arms around Ryan's neck,
planted a HUGE kiss on his cheek, and said,

"I wuv you Ryan!"

Needless to say, we all went to bed
smiling ear to ear.
especially Ryan.
**LOVE**

Tuesday, April 26, 2011

Listening, Language, and Speech Development: 2 Years Hearing

I haven't posted a speech sample in quite awhile, or really, even given an update on Aiden's language development in quite awhile. I don't have any "official" scores from standardized testing, BUT I do have my "mommy" thoughts, (and a video clip at the end), which I think, are actually more "official" than any test.

As any therapist or teacher starts a meeting with parents, they usually start with the strong points (and if they don't, I'd find a new one) and Aiden has many, but here are a few (or five).

1) Aiden is a genius. Seriously. Ok, maybe not a genius, and I know he's my kid, but the boy is mr.smarty.pants. He has this photographic memory that is utterly scary. He picks up on new concepts very quickly, which puts my mind more at ease because for a word to become part of a CI child's comprehensive vocabulary, they typically need to be exposed to it 100 plus times.

2) Receptively, he is doing phenomenally. He listens better than his hearing brother and sister (mainly because they choose to only have selective hearing).

3) Expressively, he's doing pretty good. His vocabulary list of what he says comprehensively is huge. I don't track it anymore because he's picking up on new words so quickly. He knows nouns, verbs, a good handful of adjectives, prepositions, articles, plurals, etc. and uses pretty much all of them in the proper context. He does a pretty good job enunciating single words or two words together. He's communicating his needs and wants and is definitely vocal. BUT .... (list of "buts" to come after all the non-worries).

4) He does a great job discriminating different environmental sounds and has great auditory comprehension skills all around.

5) his voice quality is good. There are times I worry about him sounding a bit nasally (which could mean he's getting too much high frequency input), but I keep my mind at ease through his AVT and his school teachers/therapists that tell me he has wonderful voice quality. He also has no problem imitating different sound durations (being able to hold a long sound - i.e. baaaaaaaa vs. a multi-syllabic sound ba-ba-ba. Six months ago, this was very hard for him. He could hold a long sound for a short time and only repeat up to two-syllable short sounds - ba-ba, which had a lot to do with his breath control and his low tone) and different tonal ranges (deep vs. high, whisper vs. scream - which screaming has become his newest favorite thing to do).

Now onto the "buts". Don't get me wrong, I believe Aiden is coming along WONDERFULLY. I really do. and how positive is it that he's speaking at all! BUT, in the same breath, I have my worries. This journey definitely comes with struggles and roadblocks, everyone's is different, but nothing we won't conquer.

Here are my mommy observations:

1) Aiden's just not much of a talker (except in church). While he plays, he talks to himself, as he walks around the house, he talks. So I should say, he's not much of a conversationalist (I know, it seems like a lot to ask). He's almost like his mind is constantly racing to stop and just talk. He's not one to ask questions (yet) and doesn't have a lot of conversational speech going on. He is just starting to answer simple "w" and how type questions. He's definitely mastered the "yes/no" question asking phase and has a perfect sounding "yes" and "no" (this step typically has to come before they'll start answering the "w" questions). Right now he does a lot of imitating, almost as if he's gotten too used to all of us modeling everything for him. The good thing about this though is he imitates me when I expand on his one-two word phrases. For example, he'll say, "wow truck!" and I'll say, "I see the truck. It's a big yellow dump truck!" and he'll repeat back, "see yewow dump truck!" He's getting there.

2.) Most of the time he talks in one to two word phrases, but we're starting to hear him put three and four words together more and more and speak more directly with us. The other night he asked me, "Mommy, bears please?" (he wanted to watch the three little bears on my computer) and he asked WITH the proper intonation so I knew it was a question. this was definitely a first (usually he would say, "bears mommy" or just simply, "bears.") my eyes leaked.

3) When he does combine more than two words, his articulation gets weak and jumbled, as if he's mumbling (he does this too with a word that has more than two syllables). We understand him, but a stranger walking down the street would probably only pick up on the first word or two. Our immediate family (gmas, aunts, uncles etc) is starting to understand him more though and have shared how he's come such a long way in the past six months. He sings songs, and I hear that tune in his voice (thank you God!), but it's hard to understand what it is he's singing. His speech can sometimes sound "lazy", if that makes sense.

4) He has trouble with his bilabials (/p/, /b/, /m/, /w/ (which is caused by low tone in his cheeks and lips) among a few other early sounds he should already have (like /t/ and /d/). (NOTE: I'm not including sounds that even a typical hearing three year old wouldn't quite have yet, like /f/ or /k/ etc. What's funny though is Aiden says a perfect /s/ and /sh/ and most of the other s blends.) There are times he says these perfectly - sometimes in isolation as when we do CV (consonant-vowel) syllable practice, and sometimes just in the beginning, middle, and/or end, depending on the word. For example, he says a PERFECT, clear as day, melt your heart, "mommy", but milk, is still "Nilk". He also says a PERFECT "baby", yet when he calls our dog Bella, it's "Dewa". The /p/, is usually perfect at the end of words (pop is "op", stop is "stop") but is completely absent in the beginning and middle of words (no matter how hard I try, I cannot get the boy to say apple, it's "ah-le".) We know he can repeat these sounds (so it's most likely not a mapping issue), but when paired with different sounds, it's either easy or difficult (like, "boo" and "moo" are very hard for him to say - yet he repeats a perfect "oo" or "ba" or "ma" in isolation). This not only has to do with poor lip closure, but also breath control and having to put multiple steps together (in the brain and orally) to produce these (see #5). Even in all this, he says "chocolate" pretty close to perfect. Go figure.

5) He has motor planning issues. THIS site provides brief examples of the different speech motor planning disorders. Aiden definitely fits into the "Sensory Processing and Motor Planning" and "Movement Execution" areas. I believe once we get our arms around this and his oral motor (he uses his teeth to talk a lot), he'll start taking off, which will then lead to more conversational type speech.

So yes, Aiden is definitely hearing and UNDERSTANDING us. He is also speaking, with some articulation set backs (oral motor) and some trouble putting what he knows together in order to voice his thoughts and create simple conversation (motor planning). He gets it though, and he'll get there.

Yes, I am SO PROUD of him and how far he's come.

Yes, I'm still worried, I'm sure to an extent I always will be, but I will not lower my expectations for him.

and yes, I know that one day Aiden will get there, and this is HIS journey, these are HIS steps. He gets it (he really is mr.smarty.pants) and he's WELL on his way, at HIS own pace.

Here's the latest speech sample I have.

Note: I had a lot of trouble with Overstream, so I included the video uncaptioned and captioned. I hope one or the other work. and don't forget to turn off the music!

This video was taken about a month ago, right after his third birthday (the day we were going to celebrate it though), and about two weeks after his second hearing birthday.

(captioned)

Friday, April 15, 2011

For the Love of Talking.

yes honey. we all hear you.

As I mentioned in my previous post, Ryan's Confirmation was this week. We try to bring Aiden to church, to teach him what it's all about, but I have to say, for my own peace of mind, Aiden's daddy often keeps him at home.

So, let me set the scene. Catholic masses are typically just under an hour. Special masses, such as a Confirmation, can last up to a good hour and a half. We first sat in the "baby friendly" section (you know the part that is out of earshot of everyone else - you can hear the priest but no one inside can hear the babies), but then were told about an open pew, right behind the Confirmation class, so we went ahead and took the chance. We were smack dab in the middle of the church. As soon as we sat down, I handed Aiden his bag of books and when that didn't suffice, my iPhone (minus the volume, and which btw, he is totally addicted to).

and still, Aiden talked. and talked. and talked. When I would "shhh" him, his grandma would look and smile, but not say a word. He wasn't screaming, he wasn't being unruly, he was just - talking. Most of the time loudly, sometimes he'd actually listen to me and use his "whisper" voice. When they played music he would loudly hum along like he was singing; actually he would do this when the whole church was completely silent too. When his daddy would stand up, he'd yell, "Daddy, sit down!" and his daddy would have to sit down to get him to be quiet. When we'd take him to the "unruly kid" part of the church, he'd scream, "NO, INSIDE!" until we headed back to the pew.

Ryan and his aunt (who was his sponsor and therefore sat by him towards the front of the church) heard all.of.it and even turned around a few times laughing. People around us - some smirked, some didn't; some smiled, some just stared. I didn't care. It was my oldest son's special day and I was going to be as close as I could to see it all and anyways what three year old doesn't talk in church? Well, that day it seemed to be only my three year old.

On the way out, as we laughed about it, my mother-in-law said it best:

"How can you shush a deaf child in church when you're so blessed that all your prayers have been answered that one day he would hear and speak?"

Amen to that mom!

and I just have to know, do other CI/hearing aid moms and dads out there have a hard time "shushing" their child as much as I do? I have to admit, I SMILE very big every time I have to do it. Maybe that's why he never takes me too seriously.

Friday, January 28, 2011

For the Love of Siblings

Aiden greets his sister every day with a hug when she gets home from school.

Even though Aiden is just a couple months shy of three,
He is in his prime of what I call,
the "terrible" TWO YEARS
or as we also say in our house, being "Calvin" like.

and with this, comes behaviors
that aren't typical of my little guy.
He truly is a VERY happy go lucky, huggy, kissy,
always smiling, nice to everyone type of kid.
I CHERISH his demeanor.

BUT, every once in awhile (okay, everyday, many times a day),
the TWO year old, or the BOY, (or BOTH) come out in him.
For example:

Santa Claus brought him a new Step Two workbench for Christmas
(and minus the screws it didn't come with means a workbench that is easily
taken apart, which is more fun for our little engineer than actually playing with it).

Anyway, last night as Aiden's sister was peacefully watching t.v.
he decided to whack her, with one of the benches plastic sides,
from behind (so she had not clue what was coming)
over the head which made her also bite her lip.

Aiden really does ADORE his sister and this isn't typical of him.
My guess is he was practicing our emotions theme
we've been working on, in which his favorite is the whole drama scene
from being sad to pretending to cry to being happy again.

As she ran over to me screaming, (very drama queen like),
Aiden stood there staring, with this smug GRIN on his face,
waiting to see what was going to happen next.

I called for him to come over by us (three times)
which he finally did with his head hanging low,
and that GRIN still on his face.

"Aiden, what do you say to your sister? You hurt her and now she's sad,
and it makes mommy mad."
(at this point I was waiting for him to haul off and smack her again),
but

He went right up to her, gave her a huge hug,
looked her right in the eye, and said,
"I SAWY Taywin."
Hugged her again, smiled (nicely) up at her,
then took her hand to go play.

at this point, I was ecstatic to see
1) that he had sympathy for his sister and
2) that he used a three word sentence to show he's getting the whole emotions theme!

Whew. That shit eating grin on his face really had me scared for a minute.
Little stinker.

Wednesday, April 21, 2010

"Ryan"

None of my children have the easiest names to say for any toddler, much less a deaf one with cochlear implants learning to hear and speak. For a little while, Aiden would say his own name when he'd see his picture on this blog. It sounded like "Ayen", but it was very short lived. In fact, I'm surprised we don't hear the same "Ayen" for his brother and sister since all my kids have two syllable names ending in the "en" sound. He has NEVER attempted either of his sibling's names, except closed mouth humming of the two syllables that each name has.

This past weekend, we were outside and Aiden was playing in the car as his daddy, brother, and I sat and talked. He was being his typical silly self so I ran to get my Flip.

Glad I did. (Excuse my loud excitement, but how about that /r/! AND it was the FIRST time I've ever heard him attempt to say "dad" instead of dada, and "cat" (do you hear a final /t/?) instead of just "meow").

Make sure to turn the music off on the left first!

I just had to pull this post back, as I wrote it very quickly this morning. What I forgot to mention is what a GREAT BIG BROTHER Ryan is to Aiden. As soon as Aiden sees Ryan, a huge smile instantly lights up his face, and he runs up to him screaming this brotherly, "Let's get on the floor right now and wrestle" type of scream. He loves everything about his big brother (including getting into everything in his room), and Ryan just said to me last night, "I love playing with Aiden, he's a great little brother." I love it.


Wednesday, February 17, 2010

Aiden's Big Sister Rocks!

Aiden's older brother and sister have always played a huge role in helping Aiden hear and speak. They are not only great language models through their everyday interactions with Aiden, but two of his biggest advocates. Anytime they have a new friend over, the first thing they do is introduce Aiden and explain his cochlear implants before the person even has a chance to ask. They are very matter of fact, to the point, and PROUD.

Now of course, they still have that typical "sibling love" and get tired of me asking, "Can you please play with your brother while I do (xyz) and make sure you ..." and before I can get it all out, they finish my sentence with a big sigh of UGHness, "I know mom, talk to him."
Ahhh, for the love of siblings.

Now the one thing I have decided to start doing more of is including his brother and sister in some sit down therapy at home. As Aiden's getting older he responds to and imitates them much more than he does me, so we make it a fun game. Kailyn is especially great at this because she loves the praise of being such a "GREAT TEACHER" and "AWESOME BIG SISTER", whereas Ryan is like "whatever mom", but every once in awhile I can convince him to put his cell phone down and make his mommy happy.

Ok ... little side note:
As any parent to a CI/hoh kiddo will tell you, one of the biggest achievements is getting your child to:

1) repeat the Lings (ah, ee, oo, s, sh, m) back to you during the ling sound check, and
2) perform a conditioned response when they hear a ling (or tone played in the soundbooth) - or what is also referred to as "listen and drop". For example, when practicing the lings with Aiden, I will hold a block (or Lego or chip or ring or bouncy ball etc) up to my ear, say the ling, watch for his response, say, "I heard that", repeat the ling, then drop the block or whatever into a bucket. The goal is to get Aiden to do the same, so that when he is being tested in the soundbooth during an audiology appointment and hears a sound, he can show he heard the sound by placing a ring on a stack, a peg into a peg board, any object into a bucket ... anything of the like to tell the audiologist, "HEY, I HEARD THAT SOUND!" It just makes for easier soundbooth time AND provides the audiologist much better information for exactly what the child is or isn't hearing so they can adjust their map accordingly.

So, today I opted to solicit Kailyn to help me out with the Lings for the first time in quite awhile. Now, get this. When I do the lings with Aiden, he'll entertain me and play the "listen and drop" game, but RARELY repeat the Lings. Check this out (and listen closely to the /s/ and /sh/ ... he's been playing with both these sounds lately, but has never repeated them for me; and make sure you turn the music off on the left first).

Note: I was testing the right implant alone. I had to remove the left completely, because if I just detach the coil, he puts it right back on! Love it!






After the boring ling checks (which I have to do while he's in his chair or I get NOTHING in return), we always have some fun, so Kailyn turned up the tunes and they jammed to some music. I have NEVER seen Aiden dance like this. What I love most is that he's imitating Kailyn plus busting out his own moves. Plus, he notices when the music stops and asks for more! Absolutely love it!

(This is not captioned since it is just Hannah Montana's "Ice Cream Freeze" playing in the background, Kailyn singing here and there, and them dancing)



Guess I need to get his sister involved a lot more often! Thanks for being such a great big sis Kailyn! Just like you're dancing, you rock!