Our precious little boy, Aiden, was diagnosed at birth with profound hearing loss in both ears; he was born deaf. This site is to help journal my feelings, keep family and friends updated on our son's journey, but more than anything, I hope our story can help ease another family's worries as so many other families have eased mine. Another chapter in our life opens ... this is Our Journey to and beyond cochlear implants ... Our Journey to let Aiden hear.
Thursday, March 10, 2011
Wednesday Workout - Helping with Housework
Wednesday, February 23, 2011
Wednesday Workout - Aiden's Experience Book


- Use clip art, printable from websites, and magazine pictures. I'm no artist, so if I don't have a picture readily available of Aiden performing the task we're talking about, I find it on the Internet or in a magazine then I ....
- Draw stick figures with a picture of one of our faces for the head. You can find great online photo print specials. I pick a few pictures of the family with good head shots then print tons of them so I can cut out our heads and use them throughout the book.
- Use cardstock for the pages, it's much sturdier. Oh, and I make sure the experience we're talking about is on facing pages (so I use the front and back of each sheet), like we're opening a book and don't have to flip the page as we talk about it.
- Use descriptive words, vocabulary you want them to learn, coloring book pages, and printables to help with themes
- Keep and use items that represent an experience and gives the story an even more personal meaning, i.e. movie ticket stub, postcard from a place visited, wrapping paper, a card received, picture from the package used (ex. picture from the brownie box), invitation, etc.
- stickers and/or specialty paper (this is an easy way to make a quick page to talk about holidays, animals, etc)
- ziplock baggies (to hold pieces for some pages - for example, we made a snowman on one page and I would have Aiden dress up the snowman with different color scarves, mittens, hats that I cut out for it, so I stored all the snowman's clothes in the baggie.)
- Crayons, markers, sharpies, glue, hole punch, stapler, tape, scissors
- Laminator (great investment)
- any misc. items collected to use one day -i.e. bubble wrap, magazine clippings, clearance holiday items to use for the next year)
- dltk-kids (a non-member site with tons of preschool activities, holiday crafts, and printables)
- Daycare Resource (a member site, but they do have some free printables)
- Making Friends.com (non-member site, many printables for paper dolls)
- Preschool Printables (non-member site with tons of fun games, ideas)
- Hubbard's Cupboard (non-member site with good lesson plans and printables for different preschool themed units)
Wednesday, February 16, 2011
Wednesday Workout - BEARS
Teddy bear, teddy bear turn around,
Teddy bear, teddy bear touch the ground,
Teddy bear, teddy bear read the news,
Teddy bear, teddy bear tie your shoes,
Teddy bear, teddy bear go upstairs,
Teddy bear, teddy bear say your prayers,
Teddy bear, teddy bear turn off the light,
Teddy bear, teddy bear say goodnight.
We each get a teddy bear and play together and I often find him singing parts of it as he plays with his teddy bears on his own.
Other songs I found we like:
Three Brown Bears (sing to Three Blind Mice)
Three brown bears, three brown bears,
See all their beds, see all their chairs,
The mommy cooked in a big brown pot,
The daddy's porridge was way too hot,
The baby bear cried a lot,
Three brown bears,
Three brown bears.
Hibernation Song (sing to Are You Sleeping) (and works on those "ing" verbs we've been practicing)
Are you eating, are you eating
little bear, little bear,
Eating nuts and berries,
For the long, hard winter
Little bear, little bear
Are you sleeping, are you sleeping
little bear, little bear
Sleeping through the winter
You are hibernating
little bear, little bear
Are you waking, are you waking
little bear, little bear
Now that it is Springtime
Sleeping time is over
Little bear, little bear.
A couple other things we've done:
- print out color sheets of the letter B, b and of different bears from the Internet
- play different songs/cartoons on You Tube to hear them in different voices
- give Aiden the props and let him tell me the story OR give him any of the books we've been reading and let him tell it to me (which of course is all over, but GREAT way to try and expand those sentences!)
Wednesday, November 10, 2010
Halloween Madness
Showing a picture with a word is also an excellent pre-literacy/phonological awareness skill to teach that letters, make words, and have meaning. After Aiden matched each separate card to the correct picture, we would "read" each word from left to right, top to bottom.
(without captioning)
(with captioning - works on my Mac, but not my PC?)
Tuesday, August 3, 2010
Park Full of Prepositions








Not only has the park been good for language, but has been tremendously helpful with Aiden's low muscle tone, balance, and sensory integration. We are really starting to see some good gains, and I believe all the time playing outside and at the park have a lot to do with it. He is not stumbling near as much as he used to, he's starting to run, and by the end of any trip to the park, he's ready for a nice nap.
Wednesday, May 12, 2010
Muffins With Mom
"Demonstrate simple praxis and organization of behavior by persisting at interactions with toys/equipment and imitating actions of others to enable purposeful play."
One way I have found that helps us reach this goal is to engage Aiden in helping around the house. He LOVES to help with cleaning up, laundry, sweeping the floor, feeding the cats, COOKING, etc. Not only are these activities filled with wonderful vocabulary, but Aiden is completely engaged until the end, which provides that needed sense of accomplishment and feel good of "I did it!". Even though it may take me twice as long to get these activities done, each additional minute is worth it.
So, the other day we made muffins.
Well, truly, Aiden baked and I directed.
We measured ...
and he poured ...
then stirred it all up (with a little help from mom).
Tuesday, April 20, 2010
Listening Room Activity of the Week
When I saw this activity, I thought it'd be a perfect way to 1) get Aiden's siblings involved in an easy to play, after school activity and 2) introduce a new activity (gotta change 'em up quite frequently or Aiden gets bored and doesn't want to "play"), yet continue to work towards the same goal of getting him to label objects with their noun name instead of just with the sound they make.
Although Aiden currently associates, and vocalizes, most of these sounds with the appropriate object, we're still struggling getting a good /oo/ and /ee/ out of him. I can say we FINALLY have the rounding of the lips and now we're just searching for the sound that goes with it! Ahhhh, one day it will come.
Wednesday, October 7, 2009
Apples and Leaves
With fall in the air, what a better time to work on the two things that remind me most of this beautiful season - apples and leaves. We started with apples/fruits about a month ago, but added in leaves. We're slowly moving on to pumpkins/Halloween for our next theme.
Theme: Apples and Leaves
Activities:
Books:
- Up, Up, Up! It's Apple Picking Time, by Jody Fickes Shapiro
- Apples, Apples!, by Salina Yoon
- Apples, by Gail Gibbons
- Leaves, Leaves!, by Salina Yoon
- Leaves, Leaves, Leaves!, by Nancy Elizabeth Wallace
- It's Fall!, by Linda Glaser
Songs/Finger Plays:
Falling Apples (to the tune of London Bridges)
This is Aiden's favorite song for both apples and leaves (just replace apples with leaves) I use real leaves and real apples and do the motions as we sing.
See the apples falling down,
Falling down, falling down,
See the apples falling down,
Down to the ground.
Pick the apples and throw them up,
throw them up, throw them up.
Pick the apples and throw them up,
Up to the sky
Peel an apple, cut it up
Cook it in a pot, When you taste it
You will find, it's applesauce you've got!
Apples/All the Leaves are Falling (to the tune of Are You Sleeping?)
Apples are falling, apples are falling,
From the tree, from the tree.
Pick up all the apples, pick up all the apples,
One, two three. One, two, three.
Five Little Apples (similar to Five Little Pumpkins or Five Little Monkeys)
Five little apples hanging on a tree
The farmer didn't care
So guess who came to eat?
A caterpillar! Munch, munch, munch!
Repeat four more times using a different animal
(again, I use real apples and leaves and whatever toy animals/puppets I have. It's a lot of fun singing this with the names of people in your family too!)
We sing all these songs with props and Aiden is very active in it. He likes making the animals eat the apples and the leaves or picking up the leaves and throwing them in the air! Another idea is to use a felt board if you have one and use cut out felt apples and leaves.
With this theme, he's voiced apple a couple of times. I don't even know how to spell how he says it, but it's more of just the vowels "a - le" without too much of the /l/. I just can't get him to say that dang /p/! Whenever he sees an apple he does say "mmmmm" and rubs his belly! When I ask where the leaves are, he'll look up in the tree or throw his hands up.
Saturday, March 28, 2009
Overwhelmed, Amazed, and Tired
This, in addition to a laptop that gets on my every last nerve with its turtle speed, and a pretty new desktop with a virus that needed restoring (but of course before I could do this, I had to save the hundreds of pictures and videos on it ... an all day task which turned into a forever task when you have a nonstop one year old! WHEW!) Therefore ... no recent blog updates!
The last couple of weeks have been a bit overwhelming. Despite lack of sleep on both our parts, (the boy is up at least two times a night, sometimes for hours at a time) he is a ball of energy. What happened to the day of playpens? He thinks the only way he can play with his toys is if we're entertaining him. And while I love all the language he gets with playtime, he needs to explore his toys on his own too ... in a limited area.
Then we add in the CIs. I was so excited to be done with the hearing aids. I thought it was the ear mold he hated and that's why he constantly tore them off. Nope. As with anything, there are good CI days and bad CI days.
- Good day = CI on most waking hours. Still working on keeping it on in the car and in the high chair. Pilot caps are not working as he just fights me tooth and nail. For a one year old, he is pretty strong, and in the end, usually wins. I need to go buy some wig tape to help the BTE (behind the ear/processor) piece stay on. Yesterday I did bend the bottom ear part around his ear lobe and into his ear a bit more, and this seemed to really help.
- Bad day = Mom following baby everywhere to consistently replace coil on head only to be ripped off and thrown by baby.
All in all, I believe Aiden truly loves to hear. He's responding more to voice and some environmental sounds. He's been responding to all Ling 6 Sounds , /m/, /ah/, /oo/, /sh/, /s/, /ee/, and is even imitating some of them (/ah/ and /mm/). Last night I was playing peek-a-boo with him and when I'd say "BOO" (covering my mouth with my hand), he'd cover his eyes and laugh. My heart melted and I couldn't get enough of it!
We're back to square one with our therapy. Here's what we're working on now.
- Distinguishing between long & short sounds - For example, "aaaahhhhh" vs. "eee-eee-eee".
- Turn taking - I've also call this the Power of Pause. When I make a sound, I'll wait for him to respond, then after he makes a noise, I'll make the sound again. This initiates taking turns.
- The /s/ sound - He doesn't respond as much to /s/ as he does the other lings. This is a high frequency sound and a little more boring. We use the teapot to imitate this. I pretend to pour the tea (while making the /s/ sound), then drink it (gulp, gulp, gulp) then "mmmmm" and rub my belly. He loves this!
- Face parts - Eyes, ears, nose, mouth ... face parts have great vowel sounds. We point out face parts on everything - in the books we read, on his toys, on us, on our cats. I'm just waiting for the day when I say a part and he actually points to it!
It is hard because Aiden was such a good hearing aid user and we were seeing a lot of this already, such as him imitating short and long sounds, turning to his name, babbling, vocalizing back and forth with us ... things I know we'll see again in time. Patience and hard work. I keep reminding myself of this. Patience and hard work. It will come.
We're also trying to find a good morning and nighttime routine. In a perfect world scenario, I'd love to be able to read him a book every night with his CI on, then lay him down for bed, but that's not working. He seems to need to have them off a bit to settle down and drink a bottle. I'd love to hear what others do.
So this is where we're at. Next Tuesday his left ear will be activated and I can't even imagine keeping two CIs on, but I am so excited to have them both turned on. It's what we wanted since day one. I'm praying that it's sooner than later that he WANTS to wear his CI's and starts realizing the difference with them on vs. off.
With all this said, I still wake up everyday with a smile on my face, as I put on his CI, knowing that they're the best gift we could ever give him! What a simply amazing journey we're on!
Friday, August 15, 2008
We Love Therapy Sessions!
- spider (eeee-eeee-eee), "Itsy-Bitsy Spider", Little Miss Spider by David Kirk or The Very Busy Spider by Eric Carle
- bus (bu-bu-bu), "Wheels on the Bus", The Wheels on the Bus, by Paul Zelinsky (this is a great interactive book!)
Being a teacher, I have a lot of these books, but if I don't, I love Amazon.
*Reading to Aiden - We continue to read Aiden around 10 books a day (we're all in this together!). I know this seems like a lot, but I'm talking about the little infant, touchy-feely, interactive books. As we read him the book, I pick out one extra thing to focus on, for example, describing the sun on each page or counting the animals on each page. Aiden loves the touch and feel books and is now reaching up himself to check it out. Another of his favorites are the books by Karen Katz, they have that lift-a-flap feature. If anyone has any other favorites or suggestions, I'd love to hear about them to add to our collection!
Now I'm off to find a toy spider (ewwww - I absolutely hate spiders, even the toy ones!) and a bus to add to our learning to listen box. Whenever I go to any store, I always look for cheap items to add to his learning to listen box and can usually find them here or there. Any suggestions on where to get all these toys would be greatly appreciated too!
Monday, July 14, 2008
Back Home and Getting Ready ...
This is what we've been working on the past few weeks:
The Listening Box - this is a box that we put all kinds of objects in for Aiden's learning to listen sounds, like different animals, an airplane, a car, etc. Of course, before I got pregnant with Aiden I sent many huge bags of baby toys to Goodwill, including the Little People garage and two barns with all the animals! The sounds we're working on right now (using a very "mama drama" voice as our AVT Miss Becky calls it):
- airplane - aaaaaahhhhhh (long sound with different pitches)
- sheep - baa-baa-baa (short sound - same pitch)
- cow - mooooooo (long sound at same pitch)
- cat - meeeeeoooow (long sound with different pitches)
- duck - quack-quack (short sound with same pitch)
- car - brrrrrrm with a BEEP BEEP at the end
- train - chug-a-chug CHOOO CHOOO
This is how our at home therapy typically works:
"Aiden, listen." (as I point to my ear)
"Airplane." (say object but don't show it ... we call this "Tell then show"
"aaaaaahhhhhh, aaaahhhhh, aaaaahhhhh" (make sound of object)
"Airplane." (show Aiden the object)
"aaaaahhhhh, aaaaahhhh, aaaahhhh" (create sound with object moving around)
Then I give the object to Aiden to check out, which, of course, goes right in his mouth . Babies learn through their senses and since Aiden can't hear, he is learning even more through his sight, taste, and hands. After he's done exploring the object, I say, "Bye-bye airplane", then put it away then ...
"Here comes more." (Then I start all over with "listen Aiden" and a new object. I'm not sure why, but I was told to use the word "more" a lot. This is a question I have for this week's session.)
Peek-a-Boo and Pat-a-Cake - We play these all the time and Aiden just loves them! Especially pat-a-cake. He gets the biggest grin on his face and laughs out loud when we "throw it in the pan!"
Vocal Play - This is where Aiden and I have our mommy-baby talks. They are so much fun! It's amazing to watch how he belts something out then will stop and wait for me. He watches my face so intensely then gets so excited to babble back! We hope that he hears himself make these sounds (even a little) and then he sees my reaction to them by me repeating the sound as well as me showing excitement. If he were to realize that nothing happens when he makes the sounds, then he'll stop making them. We all do a lot of vocal play with him!
Aiden's first booth test showed he may hear low frequency sounds in the 75-80 db range. This range does not include any speech sounds, but we're hoping his brain is detecting a short sound vs. a long sound. We're hoping that when a sound is made, he's realizing there is something there and is getting a good jump start to listening. This is also preparing us all for the therapy once Aiden receives his implants, which we're still praying he is a candidate for.
Aiden's recent milestones include:
- gaaaaaa's and kaaaaa's sounds
- da-da-da-da sound when he starts winding up and getting mad (of course Aiden's daddy takes this as his first word! : )
- short a and long a sounds
- rolling from belly to side
- grasping objects with both hands and bringing right to his mouth
- reaching for objects with both hands (we just saw this for the first time this weekend!)
- starting to hold his bottle
- Belly laughing! I love this!
- Frightened cry ... he's starting to cry when someone he doesn't know talks to him or when he seems to get frightened by a sudden movement.
The appointments we have this week are:
ENT - I can't wait for this one. We're mainly going in to see about Aiden's brachial cleft sinus. BUT, being the anxious mom I am, I am also going to ask lots of questions about the cochlear implant candidacy process. I'm hoping to get the MRI done the same time they do his surgery to close up this hole, why sedate him more than needed!
ECI - I haven't really posted about my ECI (Early Childhood Intervention) crew, I will soon. They are all wonderful! We have a Teacher of the Deaf (TOD) and an Occupational Therapist (OT) who will visit this week.
Four Month Well-Baby Visit - I can't believe my baby is four months already!
Auditory-Verbal Therapy (AVT) - We see Miss Becky this week and Miss Helen next (we rotate between the two each week).
(Our wonderful team of professionals and the role they play in our life is a post all on it's own ... I'll post this soon).
Then next week we go back to the audiologist for another booth test and to adjust his hearing aids. Very, very busy, but all well worth it! I have to say, working with Aiden has become quite fun! It is amazing to watch my baby grow ... in all ways! Every time he flashes that big grin at me just melts my heart! I know he's going to be okay; I have faith it is all going to work out; I have hope my baby will hear and speak one day and right now we're working hard to get there.






