Another Footprint in Our Journey

Besides being at the hospital from 10am to 5:30pm, the day went quite well. We started with Aiden's ultrasound on his kidneys (to help rule out Branchio-Oto-Renal syndrome) and they looked "unofficially" nice & healthy. How can a mom not ask? I know it's not their job, but they know what they're looking at, and I'm going to get any info. I can when I can. PLUS, Aiden has BOTH kidneys! This is good, because my dad only had one and this is another sign of BOR.

One hungry, tired boy, waiting oh so patiently!

After the ultrasound, we had about an hours wait until the MRI. We got called back to start the process at about 12pm, but Aiden didn't go anywhere until after 2pm and my boy was HUNGRY! They were going to give him an IV and then drops to sedate him (I didn't like the IV thing before sedation), but then decided that the better bet was to give him a local anesthetic since the MRI was going to take almost 2 hours (on his head/ears & neck for the branchial cleft sinus he has). I'm glad they went this route because I didn't want them having to sedate him again through IV once the original "drops" ran out after 45 minutes. My hardest part ... watching my little man get the mask ... broke my heart and I just couldn't watch. "Strong mommy ... be strong for your baby ... he's going to be okay", is all I could keep telling myself.

I sat and waited, and waited, and waited. Finally, after about 2 1/2 hours, they called me back. My baby was awake (and very hungry)! By the time I got back there he had already sucked down 2 bottles of pedialyte. After snuggling my baby, I asked the question about how soon I could get the results, the anesthesiologist said our ENT should have them by next week and then gave me Aiden's MRI scans & ultrasound on a CD to take up to Maryland with me! How about that! I'm taking that CD into the ENT's office next week ... I can't wait two - four weeks for results, especially if I have them in my hand now, with no clue what I'm looking at!!

All in all, Aiden did great - all day! What a trooper he is! He just amazes me ... at 5 months old. I am so proud of him! On the way home I thought about all he's been through, all we've endured together, all we've endured as his parents, and we've only just begun. Yes, I have my bad days, my sad days, my angry days, but so much more I have my happy days. And I reminded myself, it's all what you make of it, and I choose to make it a great experience!

We just completed a big part of our journey, a piece I like to think of like a fork in the road. This piece will tell us which direction we need to go next. And no matter which way it is, we'll be ready to take that next big step. I have faith that God will lead us in the direction we're meant to walk. We're on our way! How exciting!