Our precious little boy, Aiden, was diagnosed at birth with profound hearing loss in both ears; he was born deaf. This site is to help journal my feelings, keep family and friends updated on our son's journey, but more than anything, I hope our story can help ease another family's worries as so many other families have eased mine. Another chapter in our life opens ... this is Our Journey to and beyond cochlear implants ... Our Journey to let Aiden hear.
Sunday, August 12, 2012
Dear Blog,
Tuesday, March 29, 2011
Ten on Tuesday
Thursday, August 26, 2010
Wisconsin 2010
Thursday, August 5, 2010
A New Tradition
Monday, June 21, 2010
Summer O'Fun - Disney World 2010
We started it off with a BANG and piled in the car for a ROADTRIP to Florida to meet Mickey and pals. Everyone was excited to get away for some fun, although my older two are pure beach bums and would've rather been heading to hit the waves, but they loved every minute of it!
Thursday, July 16, 2009
Update via Videos
I've mentioned before that Aiden was vocalizing what sounds like "Mmmmmaaa" for "more". I finally got it caught on video. On this day, I was feeding Aiden his first cold bowl of cereal ... and he LOVED it.
We try to focus on a select few key phrases each few weeks. The ones we're working on now are,
- "Knock-knock-knock .... hello (or open)", before we open a door or really, with anything that opens.
- "SOOOO BIG!" (then throwing hands in the air).
- "Let's go bye-bye." (then talk about putting on our shoes and shake the car keys, etc, or say "bye-bye" to whoever is leaving and watch them leave.)
- "Get down please." Because he climbs onto everything ... and for him to vocalize when he wants down from his highchair.
In this video, Aiden had just started throwing his arms up when I'd say, "So big!", but what's even better is the Harley Davidson motorcycle that takes off outside and scares Aiden! You'll see too that he only has on one CI (since I was on vacation and it's inevitable that something WILL break anytime you're on vacation ... and this time it was one of his CIs). Anyway ... here's the video.
We're trying very hard to get Aiden walking. His sister didn't walk until she was 20 months, but we also know that with his hearing loss, he's more focused on learning to hear than learning to walk. PLUS, he does have EVAS, which can cause balance issues. In this video Aiden has learned to walk using his walking toy ... and then in the end gives a show of his silliness and "So Big!".
and last but not least ... Aiden dancing! It's not the best video, but Aiden has started bopping along to music lately and it just melts my heart! We are a HUGE music family ... we all absolutely love belting out some good tunes! One of the things we looked at when picking our CI brand was quality of music. In fact, we even debated going bimodal (one CI and one hearing aid) so Aiden could enjoy the acoustic sounds of music (vs. the digital sound that a CI provides). I've seen many, many videos of CI kids though dancing away, such as our blog friends Thomas, and Lucas or maybe one day he'll create his own songs like our friend Gage does.... and here are Aiden's first dance moves .. to Aretha Franklin's "Respect" ... captured on video.
Aiden has really taken off with his vocalizations this past month. Not much at all we understand, but he's making noise and any noise from him is music to our ears. He screams with laughter as he plays with his brother and sister, fluctuates his vocals, mimics short and long durations, and all in all, is just a completely silly, VERY ACTIVE one year old boy. He makes us smile ALL of the time and we can't be any prouder of our little man.
Monday, July 13, 2009
Wisconsin Part One - The Grandparents
Ryan and his great-grandpa talking WWII.
Four generations
Both of my grandparents are still going strong and looking great! Every morning Aiden and I would head over for breakfast for interesting conversations and to laugh as my grandparents "talked" back and forth at each other. Loved every minute of it. These are times I will always cherish.
I remember last year tears rolled down as I talked to my grandparents about Aiden being deaf. My grandpa would shake his head and say in a worried voice, "He's going to be okay. He's going to be okay," and continue to tell me about his deaf aunt who read lips and communicated just fine.
Thursday, June 25, 2009
Blogcation Time
Then, for the last three days I took all three kids to Glacier Canyon Resort in Wisconsin Dells. What a blast that was! My younger brother, Uncle Kevin, came too, and helped out with the crew. Unfortunately, my husband doesn't have all the vacation time we'd like him to have, so he's missing out on a lot of this, but will be meeting us here in about a week. WE MISS HIM SO MUCH! ... especially mom! I realized at the park how spoiled I am on vacations. He always lets me relax, soak up the sun, and drink my pool side drinks while he entertains the kids. None of that this time, but it was for the kids and I had a blast entertaining (and was so thankful for Uncle Kevin) ; )
I forgot the USB cord specifically used with my camera back home, so I'll post pictures and recaps when I get home.
Just being in Wisconsin has been a wondrous world of sound for Aiden. The birds are constantly chirping, there are lakes all around, laughter and I love yous from family, airplanes flying overhead, old style train tracks with trains constantly choo-chooing by (he heard his first train the other day and we were only feet from it - his look of course was priceless), big trees and flowers and big black ants and so so much more to talk about. and the best thing of it all .... NO THERAPIES - NO APPOINTMENTS - NO DISRUPTIONS! We needed this break and we're all enjoying every minute of it!
Now tomorrow we're heading out with my mom for our annual camping trip! No tents here - just a real nice trailer with all the necessities for a city girl in the middle of nature (with very little technology capabilities). We'll be off for the next week and a half, tubing, boating, soaking up the rays on the beach, playing with the kids in the sand, taking nature walks, enjoying long talks with my mom over morning coffee as we listen to the same woodpecker peck at the same metal sign over and over again, relaxing and enjoying life. I.LOVE.IT!
Monday, May 11, 2009
Taking Time for Me
a refreshed. rested. rejuvenated. and ready to go again mommy.
This is how I feel after four days in the Bahamas with my two best girlfriends from Texas. It was a much needed vacation from the nonstop life I've been living the past couple of years. When they first started planning the trip, I couldn't shed that guilty mom feeling and it was so hard for me to say, "Yes, I'll join y'all in the Bahamas", but it really couldn't have come at a better time.
I tried to justify to myself (and have others justify to me too) exactly how I could go away. Then I looked at my calendar for the past two plus years. I've been taking care of everyone else but myself. Between my dad and Aiden, I've been running from appointment to appointment, fighting with insurance companies, consulting with doctors and specialists on the best game plan, finding the best doctors and specialists to help devise this gameplan, fighting with insurance companies (this NEVER ends) etc. etc.
Then I remembered a piece from Erma Bombeck's "The Special Mother":
"...But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?" God nods. "If she can't separate herself from the child occasionally, she'll never survive..."
I knew I needed this for myself and for my family.
I have two of the best girlfriends life could ask for. I've known Andie and Helen for over 11 years, they aren't only my best g's, they are my sisters I've never had. It was so great just hanging, laughing, and catching up as we soaked up the rays and drank cocktails all day long! It was the rejuvenating medicine my soul has been searching for.
Here's the breathtaking view from our room. I couldn't get enough of it. Our all inclusive we booked, overbooked, so they sent us next door to the Atlantis, which allowed us to take full advantage of all the amenities on the grounds! That included their spa (which was oh so wonderful), waterparks, lazy rivers, aquariums, and beautiful pools and beaches! This is definitely a place I want to take my kids one day.
Sunday, August 10, 2008
Back From the Beach ...
and napped ....Now, when we first got there Aiden got his first cold. Probably because right before we left, I took the snot syringe thingy out of his diaper bag thinking we wouldn't need it. Wrong answer. He ran a small fever the first couple of days and was just stuffy nosed after that and still his happy little self (see his beach pics on the side bar).
This was our first time to Daytona beach. It was nice, but we liked the beaches & atmosphere in Destin much better. The weather was great! Low 90's, but humid and always a good breeze ... a lot better than the hot Texas heat! We spent our days at the pool or on the beach (and from the advice of our wonderful audi, left the hearing aids off and in the room). One day we walked over to the water park, which was right across the street (which, Aiden slept the whole time at!). After the past couple of years we've had, it was just so nice to get away and forget it all!
So we're back into the swing of things, school starts in 2 weeks (woo hoo!) and we'll continue on with Aiden's appts. He has his weekly AVT sessions, ECI (PT & his TOD - Teacher of the Deaf) will be coming out, another audi. appt on the 22nd, and then on Sept. 5th, we have his MRI! All this said with a smile on my face! Here we go!
Tuesday, July 8, 2008
Nothing but Peaceful Summer Days...
Camping let my mind rest of Aiden's deafness. It was so nice to just enjoy my children in a place we all love and not worry about running to therapy or doctor appointments (of course I still worked with Aiden everyday ... a little note to not stress my AVT's) or worry about what I can do with my other two to keep them busy all around Aiden's schedule. It brought back a part of me I haven't felt in a long time.
Aiden loved it just as much. The crisp fresh air really put him out! He slept great! Everyday we took a walk through the grounds down to the lake. As I walked, I listened. And naturally, without even thinking about it,
"Aiden, listen. Bird."
"Aiden, listen. Boat."
"Aiden, listen. Water."
"Aiden, listen. Fire."
There are SO many great sounds in nature! Prior to Aiden, my favorite part of camping was to wake up early, get my coffee, and sit on the deck with my mom and just chat with sounds of nature all around. I never thought much about it, just enjoyed the beauty of it. Who ever knew these sounds would become so important to me and my precious binky boy!
Throughout the week I also thought ahead. I know I'm supposed to live in the NOW, but I couldn't help but think of camping next summer. Aiden will be 16 months and (hopefully) have his implants. He'll be running around and I won't be relaxing near as much. Just thinking of what a learning experience it will be for my baby ... just thinking of all the sounds in nature that God has given us ... just thinking of the smiles and wide eyes on my baby's face as he hears these sounds for the very first time ... just thinking of all this brings tears to my eyes and a smile to my face. I have faith my baby will hear ... my baby will hear the lovely sounds of nature ... one day ... one day soon.



