Wednesday, December 10, 2008
and HERE WE GO ...
Aiden's surgery date is set! I was completely caught off guard when his audiologist emailed asking if we were still interested in a January implant date.
Ummmm ... Hello? ... YES!
I emailed back expressing my confusion about actually scheduling surgery prior to Aiden's next behavioral soundbooth. She replied that the schedule is filling up fast and that they want to get Aiden on the books ASAP for at least one implant (which we all agreed to at his last appt). Then, soon after his next soundbooth test, Aiden's daddy and I need to decide whether to implant both of Aiden's ears or just one. If we choose to have him bilaterally implanted, Aiden's surgeon also agreed to simultaneous implants, which means just one surgery to implant both sides! VERY, very exciting, if this is the route we choose (and A HUGE THANK YOU to this mom and her precious boy for paving the way)!
We're still researching bilateral CI's (both ears implanted) vs. bimodal (one CI and one hearing aid or electric hearing from the CI and acoustic hearing from the HA). We're trying to decide what would be best for Aiden. Do we really know at this point? I've seen great success stories with both. This is a very hard decision for us now after just recently finding out that Aiden has enlarged vestibular aqueduct syndrome (EVAS/LVAS), in which his hearing loss can flucuate tremendously over time, or, just one day all hearing be completely gone. Before this, we knew we wanted bilaterals, but at that time, Aiden wasn't hearing aided at 45db either! I'd love to hear from any of you and whether you chose bilaterals or bimodal and why!
So February 11th ... with insurance approval (and lots of prayers), is my baby's big day. He's on his way to hearing, and all before his first birthday! When they told me, I cried as I wrote it down. It screamed out to me ... MY SON IS DEAF. Why him? Why does he have to go through all this? He's way too young for surgery! I absolutely hate this for him, but truly know it's the right thing to do. I felt so many emotions rush through me all within 5 minutes ... panic, sadness, joy, selfishness, excitement, anger, worry ... and I just let myself cry.
As I cried, I took a look over at Aiden in his highchair, he smiled his big ol' toothless grin at me, shoved about a half dozen "puffs" into his mouth, and blurted out a big ol' raspberry and puffs sprayed everywhere! I laughed out loud and gave him a huge smooch!
Yeah ... he's going to be okay ... He's going to do great!